Hello,
I’ve been lurking here for several weeks, reading other people’s stories. Normally I don’t post about my health online, and I haven’t noticed anyone with the same issues here. I’ve come across discussions about how the mental health issues manifested themselves as physical pain… My case is a bit different, but I suspect the mechanism is the same. I’m reading all I can find about Conversion disorders, so perhaps someone here can give me some tips on where to look further.
I found myself in the hospital two years ago, shortly after a series of unlucky events (severe pneumonia, big issues at my workplace, and the funeral of my father shortly after). I experienced a sudden paralysis in my legs. To tell the truth, it scared the wits out of me. I thought I’d be in a wheelchair for the rest of my life… I also had tremors in my hands, and my state generally signaled I was having some sort of seizure. I spent 8 days in the hospital, muliple tests and IVs. The doctors didn’t know what the matter was, I suspect their main aim was to bring me back to life and send me home. My state improved over the week. I was prescribed a pile of drugs and they let me go. My symptoms were milder (I was told I'd be able to function, which greatly helped with my overwhelming panic), but I needed the support of my husband to take the taxi and, well, to live.
It took till late autumn to feel somewhat normal again. My legs got much better, but at times they betray me. It's terrifying, especially when I'm trying to do simple things like walk to the kitchen or go up the stairs. I've had to rely on my family a lot more to help me get around, mostly because I fear it will happen again unexpectedly. The tremors in my hands are almost invisible to the outside eye now, though I can still feel them at times. It's like they have a mind of their own. It may make the task of writing or even holding a cup of tea feel like a challenge.
I've had to cut back on work because I just can't keep up with the demands of my job anymore. It's frustrating because I used to be so independent, and now I feel like I'm constantly relying on others for help. I’ve been visiting the doctors (I’ve had three different ones over the last year) every two weeks, then every month. Now I do it randomly whenever my symptoms seem to worsen. I’m still not healed. It was the third doctor who insisted I should start therapy, and he made the final diagnosis: conversion disorder. I suppose it’s very rare, if it took them so long to diagnose me? I’ve been reading about it and I’ve come across many similar stories, though I got the impression that it mostly happens after some serious trauma and is considered “the illness of the veterans”.
I haven’t yet started therapy. I know I should do it to help me cope with all of this, but it's hard to take that first step. For now, I'm just trying to take things one day at a time and am seeking for more information. I’ve read that CBT was not helpful for some people, even though it’s recommended by professionals. I’ve also read about hypnosis as one potential line of treatment, it’s considered untraditional medicine? Has anyone else dealt with a similar diagnosis or symptoms on a daily basis? I need to better understand what I'm up against here.
Hello!
You have said almost nothing about the causes of your condition, so it is difficult to give any advice. However, I will give a few methods that will help to cope with a difficult situation.
1. Ask for support from others
Ask for help from others when you really need it. And even better - make a list of people you can ask for help if needed. There should be at least 15 such people. Think about what kind of help you would ask each of them. Perhaps someone will be able to empathize, someone will be your reliable support, and someone will help to cope with complex domestic issues. After all, each of us is not omnipotent and sometimes we need the help of a loved one.
2. Become a support for yourself
If it so happened that you are completely alone, don’t worry - remember the one who supported and protected you earlier. Imagine someone you could lean on - dad, grandmother, teacher or closest friend. What would he/she say to you in this situation? How would he/she act and support you?
3. Take good care of yourself
Try not to blame or shame yourself. Often in a difficult situation, we begin to attack ourselves: “This happened to me, because I’m unlucky and do not deserve happiness” or “No one loves me, I do not deserve love”. As soon as you catch yourself thinking of that, try to stop the flow of self-blame for a couple of seconds. It probably won’t help you right now. Try to look closely at these thoughts: does NOBODY really love you? Is it true that you are ALWAYS unlucky? Or is there at least one person/one situation where everything went wrong?
4. Accept the situation
Many of us are used to torturing ourselves with endless thoughts “if I hadn’t done this, everything would have been better”. Everything worked out the way it did. Humanity has not yet invented a time machine that can take us to an alternate reality. Try to accept where you are, here and now. Sometimes this is enough to ease your condition and start moving on.
5. Draw on previous experience
Every person in life had situations where he managed to cope with stress. Try to remember back to when you came out a winner from a difficult situation? What qualities helped you do this? Who was next to you and helped?
6. Visit your resource place.
Think of a place where you feel comfortable and safe. For some people it is their own room, for others - a park or a river bank. Visit this place - in reality or in your imagination. Stay there for as long as you want.
We hope that our recommendations will help you. We wish you all the best!