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Amanda
1y ago

Conversion disorder (due to stress?)

Hello,

I’ve been lurking here for several weeks, reading other people’s stories. Normally I don’t post about my health online, and I haven’t noticed anyone with the same issues here. I’ve come across discussions about how the mental health issues manifested themselves as physical pain… My case is a bit different, but I suspect the mechanism is the same. I’m reading all I can find about Conversion disorders, so perhaps someone here can give me some tips on where to look further.

I found myself in the hospital two years ago, shortly after a series of unlucky events (severe pneumonia, big issues at my workplace, and the funeral of my father shortly after). I experienced a sudden paralysis in my legs. To tell the truth, it scared the wits out of me. I thought I’d be in a wheelchair for the rest of my life… I also had tremors in my hands, and my state generally signaled I was having some sort of seizure. I spent 8 days in the hospital, muliple tests and IVs. The doctors didn’t know what the matter was, I suspect their main aim was to bring me back to life and send me home. My state improved over the week. I was prescribed a pile of drugs and they let me go. My symptoms were milder (I was told I'd be able to function, which greatly helped with my overwhelming panic), but I needed the support of my husband to take the taxi and, well, to live.

It took till late autumn to feel somewhat normal again. My legs got much better, but at times they betray me. It's terrifying, especially when I'm trying to do simple things like walk to the kitchen or go up the stairs. I've had to rely on my family a lot more to help me get around, mostly because I fear it will happen again unexpectedly. The tremors in my hands are almost invisible to the outside eye now, though I can still feel them at times. It's like they have a mind of their own. It may make the task of writing or even holding a cup of tea feel like a challenge.

I've had to cut back on work because I just can't keep up with the demands of my job anymore. It's frustrating because I used to be so independent, and now I feel like I'm constantly relying on others for help. I’ve been visiting the doctors (I’ve had three different ones over the last year) every two weeks, then every month. Now I do it randomly whenever my symptoms seem to worsen. I’m still not healed. It was the third doctor who insisted I should start therapy, and he made the final diagnosis: conversion disorder. I suppose it’s very rare, if it took them so long to diagnose me? I’ve been reading about it and I’ve come across many similar stories, though I got the impression that it mostly happens after some serious trauma and is considered “the illness of the veterans”.

I haven’t yet started therapy. I know I should do it to help me cope with all of this, but it's hard to take that first step. For now, I'm just trying to take things one day at a time and am seeking for more information. I’ve read that CBT was not helpful for some people, even though it’s recommended by professionals. I’ve also read about hypnosis as one potential line of treatment, it’s considered untraditional medicine? Has anyone else dealt with a similar diagnosis or symptoms on a daily basis? I need to better understand what I'm up against here.

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